Food Protein Induced Enterocolitis Syndrome is a difficult disease and follows no rules. It is non-pathogenic and is diagnosed based on symptoms. Each story is unique, making the simple task of feeding your child daunting and scary. It presents itself in various forms, mostly acute and severe GI upset; either vomiting or diarrhea. Some children go into shock and need to be hospitalized, while others suffer through extreme pain until the episode resolves on its own.
Click on Pearl’s story and Oren’s story to read about our personal approach to overcoming FPIES.
Helpful Links:
I found comfort and valuable advice in speaking to other FPIES moms and dads on this Facebook forum:
https://www.facebook.com/groups/231244343581206/
The FPIES Foundation is also very helpful, offering advice, articles and creative tips for food prep:
http://fpiesfoundation.org/about-fpies-3/
I referred to this wonderful food graph when introducing food to my children. It shows reaction statistics to each food through direct ingestion or breast milk: